April 2007
19 posts
1 tag
4/28/07 - 11:43 PM PST
For all your John fans who are going through withdrawal here is what he has been doing for that last few of days. We had an appointment with the physiatrist here at the University of Washington. Dr Bell would like to have a team approach to care to assure continuity. She would like him to see a vocational councilor. To continue with his physical, occupational and speech therapy. During the...
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4/24/07 - 11:13 PM PST
John doesn’t feel comfortable to stay at home alone for too long. He has so few things that he can do than he gets bored. I also think he is scared that he will have another seizure. Even though it has been several months this is a concern for him. So thank you to those of you who have offered to come and stay with him while I go and get some errands done. He can and does come with me but is...
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4/22/07 - 9:08 PM PST
I know that we haven’t been writing for the last few days. It has been small but steady progress. Sometimes it is hard to see. We have been working on the piano. He took his first lesson last week and has been working on the scales and also some songs he played at his last piano lessons he took as a freshman in college. The fraternity has Steinway piano that was donated to them as a gift...
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4/19/07 - 9:11 PM PST
We finally were able to see the speech therapist today. It was just an evaluation but she also feels that John will need to be seen twice per week with homework sessions between times to supplement. For that last few days since we wrote last we have been doing some work on the book Eragon. We were finally able to finish it and then treated ourselves to seeing the movie. It was interesting to see...
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4/16/07 - 11:00 PM PST
For all you John fans I know you have been waiting with bated breath for news on our wonder, miracle boy. He is doing well. We have been avoiding Rob because he has a head cold. John received good news today that there was a cancellation and we are able to get into the physiatrist on the 26th of April instead of the 3rd of May. So he will have a complete evaluation from her. I hope this will lead...
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4/13/07 - 9:35 PM PST
Even though it is the 13th of Friday it didn’t bring us any bad luck. We stayed home today. John worked on his bike, did some emailing worked on his piano music. He was tired from yesterday and took a nap this afternoon. We also spent some time looking at the books on tape that are available through the library and made some orders from the website. He is looking forward to getting these...
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4/12/07 - 9:30 PM PST
John finally was able to have his evaluation for physical and occupational therapy today. We were impressed by the people and the facility. It looks like we will have a good fit there. We will be seeing those disciplines twice a week. We have the speech evaluation next week. We also had our appointment yesterday for neurology. I liked her but I am not so sure if she is the right fit for us as she...
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4/10/07 - 9:58 PM PST
John changed his message on his face book profile. He received many emails from his friends who also noticed the change. He was touched that so many of you noticed. We also have been tracking the number of hits we get here on the blog. Since not much is happening we were considering maybe only posting something once in a while when major changes happen but since we received over 90 hits per day we...
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4/9/07 - 10:37 PM PST
John and I went to the grocery story and also to Mills Music to buy him a piano music book he used to use when he was in the fraternity. After some looking we were able to locate it. He was looking for the Moonlight Sonata. He remembers playing that but is a bit rusty. He is listening to it and following along in the book. He finds his eyes tire when he is trying to see the notes. Fatigue is...
1 tag
4/8/07 - 8:56 PM PST
Hope all of you had as nice an Easter as we did. We went out for mass and then brunch. Reading the menu and song book at church are still a major challenge for John. We saw many people we hadn’t seen since we have been back. Yesterday we went to a movie called The Breech about an FBI agent who turned secrets over to Russia. It was a true story and we had a good time. It was interesting and...
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4/6/07 - 10:51 PM PST
We finally got a call from the UW rehab therapy people and have him on the schedule for next week. John worked out today on his bike for about 30 minutes. He also went through and sorted some of the things in the last few boxes. Setting aside things that he will need for school when he goes back. He had a hard time getting up this morning and he went back to sleep after having breakfast. His...
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4/5/07 - 11:05 PM PST
Today John slept in like a normal college student. No amount of effort from my part could get him up. He had trouble falling asleep. I think he is still working things out in his mind. This takes time and you can’t do it all at one time. Once he was up we got to some books on his book shelf in his room sorting and purging some of the ones he could part with to make room for some things he...
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4/4/07 - 10:02 PM PST
Today John slept in to get some much needed rest. He is having trouble getting to sleep at night. So he wants to sleep in. When he does this it has him starting his medication late. When he takes is medications late it pushes the whole day back. We are trying to get him awake earlier so he can have his medication earlier so that it wears off so that he can be ready for sleep at the end of the day....
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4/3/07 - 9:39 PM PST
Today John had a headache for the first time since before the surgery to replace the bone back. He didn’t feel like doing much so we just spent the day resting. I think it is just his eyes fatiguing since he complained that his eyes felt tired. They are a bit red. He concentrates so hard that I feel that they do strain. He has been trying so hard to make it happen that he is over working his...
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4/2/07 - 6:57 PM PST
John was very tired this morning from going to bed like a regular college student. He woke up late and had a hard time getting started. We thought we had an appointment with the physical therapist today but when we got there we realized it isn’t the one that we had set up with through the UW. We are still working on getting an appointment with them. We are praying that someone will cancel on...
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4/1/07 - 10:50 PM PST
John was at home all day today but not because we were being lazy. He worked on his computer looking at things on the web. He also has been emailing some of his friends. He was able to work at putting his computer, the Gemini, back together all by himself when all the cables and parts finally arrived by mail. We worked on sorting some of his clothes to make room in his closet for all he brought...
